Expert Views on Hypopara

The Seeds of Change initiative is committed to supporting greater understanding of hypoparathyroidism (hypopara) and the impact it has on patients’ lives. Through collaboration with leading professionals in hypopara, we explore the complexities of hypopara management, share insights from real patient experiences, and reflect on how clinical practice can continue to evolve – helping healthcare professionals better support those living with this rare condition.

Dr Zaki Hassan Smith

Beyond the Numbers: Breaking Down Misconceptions in Hypoparathyroidism

By Dr Zaki Hassan-Smith, Honorary Consultant Endocrinologist, University Hospitals Birmingham NHS Foundation Trust; Clinical Associate Professor, Aston University.

Dr Hassan-Smith reflects on the potential limitations of a metrics-only approach to hypopara management, the need to recognise psychological burden, long-term complications, and the role of patient empowerment and community support in improving outcomes.

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Dr Afroze Abbas

The Silent Condition: Managing Long-Term Complications in Hypoparathyroidism

By Dr Afroze Abbas, Consultant Endocrinologist, Leeds Teaching Hospitals NHS Trust.

Dr Abbas focuses on the often-overlooked long-term complications of hypopara, including renal, cardiovascular, bone and cognitive risk.

He highlights the importance of proactive monitoring, multidisciplinary care and patient education to achieve improved long-term outcomes for people living with hypopara.

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“For some people with hypopara, their symptoms can be well managed. For others however, managing the condition can be very challenging, mainly due to its broad and indistinct symptoms”

Dr Zaki Hassan-Smith

“Clinicians must remain vigilant about the potential long-term complications of hypopara that can emerge over time”

Dr Zaki Hassan-Smith

“Evolving management practices that include comprehensive long-term care strategies are required to ensure physicians can keep patients out of hospital, whilst minimising the complications related to chronic hypopara”

Dr Zaki Hassan-Smith

“In today’s hypopara treatment landscape, the current focus on short-term serum calcium correction is not going far enough. Effective management demands a broader and more comprehensive approach”

Dr Afroze Abbas

“Looking ahead, we must reframe the way we think about hypopara. This includes investment in and implementing more regular proactive surveillance of long-term complications”

Dr Afroze Abbas

“We must continue focusing on patient education and empowerment, to help individuals living with hypopara and their families to better understand their condition and manage symptoms”

Dr Afroze Abbas
October 2025 | UK-COMM-2500010
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Seeds of Change is a disease awareness initiative developed and funded by Ascendis Pharma UK Limited and supported by Parathyroid UK and Society for Endocrinology.