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Living with hypoparathyroidism

Woman in a garden

Impact of hypoparathyroidism on quality of life, physical functioning and psychological wellbeing

The burden of hypoparathyroidism (also known as hypopara) negatively impacts health-related quality of life, physical functioning, and psychological well-being, regardless of serum calcium levels. 2, 17, 18

Tab 1 content.

Tab 2 content.

Impact on quality of life

In a survey of 42 people living with hypopara, the respondents reported the following impacts on their daily life, mental health, activity and social life & relationships. 17

Daily Life 17

79%

were not able to do as many things around the home

43%

said that hypopara interferes with their ability to work

67%

were unable to do as much as they used to/want to

Mental Health 17

81%

felt anxious or had anxiety

64%

felt frustrated

62%

felt depressed or sad

Activity 17

76%

were not able to exercise in the same way

52%

are less active than they used to be/want to be

50%

were not as mobile (including ability to walk)

Social Life & Relationships 17

79%

were less able to engage in social activities

57%

were limited in the types of social activities they could do

43%

said hypopara affected their relationships with family
Patient stories

Meet Laura, Sabine and Fabienne, who are living with hypoparathyroidism. In the videos below, they share their experiences of symptoms, diagnosis, treatment, and the impact hypopara has had on their lives, along with their personal perspectives.

Meet Laura

Meet Sabine and Fabienne